*This event is designed for individuals living with, or caring for someone with, a Rare Genetic or Undiagnosed (RGU) condition. However, if you feel the session would be valuable for you, we warmly encourage you to register. Special presentation - Health Advocacy and Consumer Leadership with Health Consumers’ Council Come and join the Engagement and Advocacy teams at the Health Consumers’ Council for a chance to hear about what they do and how they support health consumers in WA. The team will talk about the importance of giving feedback to health services, where the right place for feedback is, and how to do it. You will hear what to expect in response to your feedback and learn why giving feedback is one of our health rights. You will also learn how to access your health information, including accessing medical records from your doctors and health providers, My Health Record and Manage my Care. The team will also give some tips about getting the most out of those valuable medical appointments, and how you might want to prepare for them. The team will also talk about how you can use your experience as a consumer rep, some of the opportunities out there for consumer representatives and lived experience reps. The team will talk about how to get started and why consumer reps are vital to ensuring safer and more person-centred health services.

Facilitated by Relationships Australia, this workshop looks at the difference between healthy and unhealthy boundaries and explores skills that help with good boundary setting. By the end of the workshop, you will have a toolbox of practical strategies including skills in setting healthy boundaries and verbalising personal goals and objectives of change. *This event is designed for individuals living with, or caring for someone with, a Rare Genetic or Undiagnosed (RGU) condition. However, if you are not a part of the RGU Program but feel the session would be valuable for you, please contact Janel at janel@alike.org.au.