*This event is designed for individuals living with, or caring for someone with, a Rare Genetic or Undiagnosed (RGU) condition. However, if you feel the session would be valuable for you, we warmly encourage you to register. Special presentation - Health Advocacy and Consumer Leadership with Health Consumers’ Council Come and join the Engagement and Advocacy teams at the Health Consumers’ Council for a chance to hear about what they do and how they support health consumers in WA. The team will talk about the importance of giving feedback to health services, where the right place for feedback is, and how to do it. You will hear what to expect in response to your feedback and learn why giving feedback is one of our health rights. You will also learn how to access your health information, including accessing medical records from your doctors and health providers, My Health Record and Manage my Care. The team will also give some tips about getting the most out of those valuable medical appointments, and how you might want to prepare for them. The team will also talk about how you can use your experience as a consumer rep, some of the opportunities out there for consumer representatives and lived experience reps. The team will talk about how to get started and why consumer reps are vital to ensuring safer and more person-centred health services.

Facilitated by Relationships Australia, this workshop looks at the difference between healthy and unhealthy boundaries and explores skills that help with good boundary setting. By the end of the workshop, you will have a toolbox of practical strategies including skills in setting healthy boundaries and verbalising personal goals and objectives of change. *This event is designed for individuals living with, or caring for someone with, a Rare Genetic or Undiagnosed (RGU) condition. However, if you are not a part of the RGU Program but feel the session would be valuable for you, please contact Janel at janel@alike.org.au.

Thinking About Incorporation for Your Support Group or Organisation? Join us for a special information session led by Sherl Westlund, a leading advisor in the not-for-profit sector. This session will help you explore whether incorporation is right for you, why it matters, and what you need to know. What’s in it for you? • Gain expert insights on incorporation. • Connect with others in the Peer Support Group sector. • Enjoy complimentary drinks and canapés. Registrations are essential—secure your spot today!

Aligned with Rare Disease Day 2026, this special event marks the launch of Alike WA’s new online platform as part of the Rare, Genetic and Undiagnosed Conditions (RGU) Program. Bringing together professionals, carers, and people with lived experience, the evening will provide a space for connection, knowledge sharing, and sector-wide collaboration. The program includes: - Networking sundowner for in-person attendees (5.30pm registration and welcome) - Showcase of the new online platform, available both in person and online - Panel discussion: Beyond the Gaps: Lighting the Future of Rare and Undiagnosed Care Featuring sector experts and lived experience voices, with opportunities for interactive Q&A (6.30–7.30pm) Guests are welcome to stay and continue networking at the bar after the formal program concludes.