This networking session is an opportunity for those living with or caring for someone with a Rare, Genetic or Undiagnosed (RGU) condition to come together and create a safe space to chat with other people going through the same or similar circumstances.
Special presentation - Health Advocacy and Consumer Leadership with Health Consumers’ Council
Come and join the Engagement and Advocacy teams at the Health Consumers’ Council for a chance to hear about what they do and how they support health consumers in WA. The team will talk about the importance of giving feedback to health services, where the right place for feedback is, and how to do it. You will hear what to expect in response to your feedback and learn why giving feedback is one of our health rights.
You will also learn how to access your health information, including accessing medical records from your doctors and health providers, My Health Record and Manage my Care. The team will also give some tips about getting the most out of those valuable medical appointments, and how you might want to prepare for them.
The team will also talk about how you can use your experience as a consumer rep, some of the opportunities out there for consumer representatives and lived experience reps. The team will talk about how to get started and why consumer reps are vital to ensuring safer and more person-centred health services.
*This workshop is tailored for people living with, or caring for, Rare Genetic and Undiagnosed (RGU) conditions. If you are unsure whether this workshop is right for you, please get in touch with us at info@alike.org.au.
				Training Room at Health Consumers' Council of WA