About

Creatively Improving End of life Care for People Now and in the Future: Seth's legacy

In 2014 Seth Goodburn died from pancreatic cancer 33 short and heart breaking days after diagnosis. Seth's wanted to die at home however, the weight of systems and processes meant that he sadly died in an acute hospital. After Seth died his wife Lesley shared their story via a play, a film and an educational resource called Seth's Story 

Sharing the story has three aims to 1.improve and of life care, 2. highlight the need for psychosocial support and to raise awareness of pancreatic cancer signs and symptoms. 

10 years later join us at this FREE conference to hear the impact of sharing Seth's Story, the improvements that have been made and future plans to help others share their experiences through creative art forms.

This interactive series of talks and discussions will cover:

• Hearing and seeing the person who has a terminal disease
• Role of creativity in understanding expereince of care at end of life
• The power of sharing lived experiences through storytelling
• The role of the people who are important to the person receiving care and their role in care partnerships
• Understanding who and what is important to the person receiving care
• Can compassion be taught or is it an innate quality
• How to have compassionate kind and gentle conversations
• How will the new integrated care systems help focus on palliative and end of life care
• What are the key challenges for the future of end of life care 

The event is hybrid, you will need to to register here, if you want to attend virtually. for the MS Teams link

The event is hosted at  Marie Curie London, 1 Embassy Gardens, Nine Elms, Vauxhall London SW11 7BW - please use the register button above if you would like to attend in person. There is a limited capacity of 45 places in person.

Draft agenda - subject to change

Creatively Improving Care for People Now and in the Future Seth's Legacy

10.00 -10.05 am Hello and Welcome – Lesley Goodburn

10.05 – 10.30am What needs to change for better end of life care

• Dr Sarah Holmes Marie Curie  
  Sarah Bell Pancreatic Cancer UK 

10.30 -11.30am – How can Creativity improve end of life care?  

Chaired by Lesley Goodburn and Laura Elliot

Panel discussion

• Anita Hayes – Hospice UK
• Lesley Mickel and Stephanie Smart – Inverness Drama School
• Elizabeth Coplan – Grief dialogues
• Rachel Osbourne – Dove House Hospice
• Lynn Calman – University of Southampton

11.30am - 11.45am Break - Refreshments

11.45 - 12.45pm The Power of Stories and Lived Experience

Chaired by Dr Sarah Holmes/ Lorna Elliot

• Jacqui Smith - Dying to Be Heard in the NHS 
• Louisa Nicoll – Sarcoma UK Story
• Deb Hazeldene -  Lessons from Mid Staffordshire  

12.45 pm - 1.30pm Lunch break

1.30pm - 2pm Seth's Legacy Performance by students from Cardiff University Drama Department-

2pm – 3pm The Role of creativity in improving user voice end of life care

Chaired by Sam Royston, Marie Curie

• Dame Ruth May, Chief Nursing Officer, England  (personal capacity)
• Bishop Sarah Mullally – Bishop of London and Chair of the UK Bereavement Commission
• Baroness Illora Finlay of Llandaff
• Professor Bee Wee University of Oxford

3pm - 3.45pm - Open sessions (each session will run for 20 minutes after each other)

3.00 pm - 3.15pm Self Compassion: Creative session 
Faye Whale, Leeds Teaching Hospital 

3.15- 3.40pm  Pancreatic Cancer  - unique challenges
Sarah Bell, Pancreatic Cancer UK

3.40pm- 4.00pm Grief and Bereavement How users voice can inform services
Alison Penny National Bereavement Alliance 

 4.00pm Thank you and next steps: Lorna Elliot and Lesley Goodburn  

14 June 2024

Location

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Marie Curie London
One Embassy Gardens, 8 Viaduct Gardens, Vauxhall, London, Greater London SW11 7BW

Contact Event Organiser