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RGU Program - Networking Session - September

RGU Program - Networking Session - September

About

This networking session is an opportunity for those living with or caring for someone with a Rare, Genetic or Undiagnosed (RGU) condition to come together and create a safe space to chat with other people going through the same or similar circumstances.

Special presentation - The Silver Lining of Life’s Challenging Environments
Presented by Helen Wilson and Amber Gilkes, this presentation shares the lived experiences of two mums navigating the challenges of the rare disease environment — including relationships, medical systems, education, and, ultimately, ideas around quality of life in the paediatric space.

*This networking session is for members of the Rare, Genetic and Undiagnosed Conditions Sector.

Date

Tuesday 2 September 2025 10:30 AM - 12:00 PM (UTC+08)

Location

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City of Melville EcoHub
555 Leach Highway, Winthrop WA 6150

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