Rare Disease Day Sundowner: Beacon Launch
About
Aligned with Rare Disease Day 2026, this special event marks the launch of Alike WA’s new online platform as part of the Rare, Genetic and Undiagnosed Conditions (RGU) Program. Bringing together professionals, carers, and people with lived experience, the evening will provide a space for connection, knowledge sharing, and sector-wide collaboration.The program includes:
- Networking sundowner for in-person attendees (5.30pm registration and welcome)
- Showcase of the new online platform, available both in person and online
- Panel discussion: Beyond the Gaps: Lighting the Future of Rare and Undiagnosed Care
Featuring sector experts and lived experience voices, with opportunities for interactive Q&A (6.30–7.30pm)
Guests are welcome to stay and continue networking at the bar after the formal program concludes.
Date
Thursday 26 February 2026 5:30 PM - 8:00 PM (UTC+08)Location
Albatross Lounge
Level 1, 893 Canning Highway, Mount Pleasant WA 6153
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Rare Disease Day Sundowner: Beacon Launch
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