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Na’ama Carlin & Louise Chappell - Being Patient

Na’ama Carlin & Louise Chappell - Being Patient

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6pm for 6:30pm Thursday 14 May

Na’ama Carlin & Louise Chappell are joined by Victoria Spence & Aaron O'Sullivan, in conversation with Fran Kelly.

Na’ama Carlin, Louise Chappell and Siobhan O’Sullivan all received the diagnosis people dread – cancer. Working in universities, these three women knew how to speak up. But in Cancer World, their voices were often unheard. As they negotiated medical hierarchies, ‘scanxiety’, gender bias, ongoing treatments and confronting diagnoses, they met others who felt the same. In Being Patient, Na’ama, Louise and Siobhan share their own stories and talk to people about their experiences as patients and carers in Cancer World. Including stories from cancer experts – nurses, surgeons, radiologists, oncologists and researchers – Being Patient is unflinching and uplifting and offers unvarnished views of living with cancer from ‘both sides of the desk’.

'You don’t need to be a goody two-shoes if you’re receiving cancer care. In fact, as this uniquely insightful book will tell you, among many other things, it sometimes helps if you aren’t.’ – Norman Swan

‘Deeply humane and quietly transformative’ – Professor Ophira Ginsburg, Chair of the Lancet Commission on Women, Power and Cancer


Na’ama Carlin is an award-winning educator and Senior Lecturer in Sociology at the University of New South Wales. She has written about the need for policy reform concerning pregnancy and cancer and has advocated for equitable access to cutting-edge cancer medication.

Louise Chappell is a Scientia Professor at the University of New South Wales, where she researches gender justice in relation to politics, policy, and law. Committed to improving cancer patients’ experiences and supporting health professionals in delivering informed care, her work highlights the power dynamics that can influence treatment decisions and outcomes.

Siobhan O’Sullivan was an Associate Professor of Social Policy and Research at the University of New South Wales, where she worked on inequality, welfare-to-work policy, and animal protection. Siobhan was diagnosed with ovarian cancer in August 2020 and underwent extensive treatment, including chemotherapy and surgery. She dedicated her final years to advocating for greater investment in research into ovarian cancer early detection and more effective treatment options. Siobhan died in June 2023.

Victoria Spence is Founder and Director of Life Rites. She is a holistic funeral director, celebrant, mortality doula, counsellor and pioneer of Life Rites' model of integrated end-of-life and after-death care.

Aaron O'Sullivan is an entrepreneur and the brother of Siobhan O'Sullivan.

Fran Kelly has covered federal Politics for the ABC for many years and was host of the agenda setting RN breakfast programme for 17 years. She was the Europe Correspondent and has co-hosted the political podcast The Party Room for the past 10 years and 4 elections. Fran currently hosts daily current affairs/interview show The Radio National Hour

Date

6pm for 6.30pm Thursday 14 May

Location

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Upstairs at Gleebooks
49 Glebe Point Road, Glebe NSW 2037

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